It hasn’t been too long ago that my oldest son Caleb was finally diagnosed with something that made sense. A year and a half ago we were given the diagnosis of PDD-NOS, high functioning Autism. PDD-NOS stands for Pervasive Development Disorder Not Otherwise Specified.
Basically, Caleb is borderline Autistic. If one were to hang out a few days to a week with him you might otherwise disagree. He is the sweetest, loving, caring boy at times. Other times no one wants to be around him or deal with him. You “ruin” his day and he’ll ruin yours.
I am learning to build a routine with Caleb because if I don’t then some days are like hell for me. If he asks me to wake him up with one of his stuffed puppy dogs then I need to do that. I have to make sure he has his backpack, shoes and glasses or at least remind him a few times to get them as he walks out the door. On the days he needs to carry his blanket I have to help him.
If someone else has to pick him up I have to make sure he knows or he gets upset.
For at least the last two years I have had to deal with Caleb’s incessant spitting. When I say incessant I mean it is everywhere. The carpet by the couch turned black and got stiff, spitting outside our apartment door, on the steps, sidewalk and even in my Jeep. Spit on the bathroom floor, kitchen, at my best friends house.
We have done everything suggested to us by his therapist from putting a rug by the couch, putting plastic down to giving him his own trash can to spit in. I recently spent four hours cleaning the floor board of my Jeep and painting it because where he sits was so bad it was rusting (I removed the carpet two years ago, partly because of this).
He has even gotten in trouble at school for spitting. Caleb says it is because germs get into his mouth. It’s annoying and gross and at times I feel helpless about it. Other days he rarely spits so I haven’t pinned down why some days are worse than others although he is very sensitive to smells . That can cause him to spit more especially if he doesn’t like the way someone smells or how food smells.
One thing I am working on is understanding his sensory issues and hopefully with that we can decrease the whole spitting issue.